Thursday, October 29, 2009

Trunk or Treat


My kids dressed up as Little Red Riding Hood, Bumblebee, Optimus Prime and Katelynn went as a naughty teenager. We went to the churches "trunk or treat." It was freezing but the kids had a good time!!







Wednesday, October 28, 2009

Snow!!!

We got up really early this morning to be at UNM by 9:30. We got about 20 minutes away from home and decided to turn back around because we didn't want to die on the snow packed roads. So we rescheduled the CAT scan for next Wednesday!!

Tuesday, October 20, 2009

We are finally done!!!!


This is Kristoffer getting his last dose of chemo!!! He was so excited. His counts even came up enough today that we could have brought him home but Connor has a flu bug so we did not want him getting it. We will hopefully bring him home tomorrow.


The doctor and nurses were so sweet and had a little party for Kristoffer with pizza and cupcakes and of course presents! He was all smiles! We have loved the staff. They have helped make our roller coaster ride a little more tolerable.

Sunday, October 18, 2009

What's next??

After Kristoffer recovers from this round of chemo, we will have a final CAT scan on the 28th. Then he will have his heart checked to make sure no damage was done during chemo. He had it checked halfway thru and it was normal. Then we will have our final appointment with the doctor on November 9th. We will find out the results of all the tests at this appointment. Then we will be done!! Yeah!! They will do a CAT scan every 3 months for the first year to make sure nothing is coming back! After that I think they do a CAT scan annually. These scans will all be compared to the scan he gets on the 28th. I will be a nervous wreck each time he gets a new scan. The one on the 28th should be normal.

Friday, October 16, 2009

Our last visit to the hospital!

Well we are back in the hospital with low counts for what I hope will be the last time. Kristoffer came in for blood and platelets and wouldn't you know it his temperature was right at the 100.4 cut off for being admitted. So what was supposed to be outpatient is now inpatient. I knew it was coming, I just hoped it wouldn't. The skin around his poor feeding tube starts to break down when he has no immune system. It is painful for him. I hope he rebounds quickly! Poor baby is sick of this roller coaster. His mom is too!

Sunday, October 11, 2009

Random pictures


Kristoffer has a little cold right now which we are praying goes away before his immune system goes down this coming weekend. He is watching Connor play the Nintendo DS! This DS has been a great source of entertainment for the many long stays in the hospital.


Kristoffer loves his cousin Bella!! He just lights up when she is around!

Thursday, October 8, 2009

Button, button who has the button

Kristoffer does!! Today we are having the GI doctor remove Kristoffer's feeding tube and replace it with a button that is just flat against the stomach. You can open it up and put food in and close it when you don't need to use it. It will be much nicer for him. Better than a 6 inch tube hanging out his stomach! We are officially done with the worst chemo drugs. No nausea or vomiting! But it can take 6-9 months for his appetite to be back to normal so we will leave the "button" in until we feel he will be fine without it. So maybe when he is 18 we will take it out. Just kidding!

Tuesday, October 6, 2009

Is this really the last round of chemo?

Kristoffer's counts came up enough for chemo this week. We are at UNM today and tomorrow to begin the last round of chemo. His red blood cells were low so he also had to have a blood transfusion. I hope he doesn't have any nausea or vomiting. They lowered the dose 25% again because his body is just so tired! I am hoping this will keep him from running a fever and getting too low again. It has been a long 9+ months. What was life like before the C word came into it?