Saturday, March 31, 2012

The Results...

Everything on Kristoffer's ultrasound and chest X-ray looks normal!  The preliminary report on his ECHO and EKG was normal.  The Doctor we saw was amazed at how well Kristoffer was doing.  Of course the last time she saw him he was getting chemo and looked awful.  We reviewed what possible side effects he could experience as he grows older.  Some of them are hard to hear.  I won't bore you with the list but as of right now he has not experienced any of them.  So our next round of testing is in 6 months.  And thank heavens for that cause we left our house at 7a.m. and returned at 10p.m.  I was exhausted and I hate driving at night cause it makes me wanna go to sleep.  Luckily my mom came with me to spell me off when I was needing a nap!  All in all a good trip with good news!

Tuesday, March 27, 2012

Here we go again...

I can't believe it is time to go back to UNM again on Friday!  This has been the longest break we have had from them.  There were times I even forgot that my son ever had cancer.  Well not really but I was loving the normal life that we had before diagnosis.  He will have an ECHO and EKG of his heart and a chest x-ray and ultrasound of his abdomen.  After his testing we will begin a new chapter and meet with the doctor over the YES (Young Enduring Survivorship) clinic to discuss the long term effects of chemo and radiation and what his future will look like.  Amazingly Kristoffer has never had any long term side effects from the chemo/radiation.  Kristoffer did basketball this winter and absolutely loved it.  He has had struggles with school and learning but nothing related to his treatment.  We have been so fortunate to come through this ordeal unscathed.  I finally can walk down the halls of the hospital without a horrible feeling of dread (which is good cause I just started working back at the hospital a few weeks ago).  I think I am more emotionally scarred by the whole thing than he was.  I wasn't sure if he was going to live or die and he never new the seriousness of the situation.  Kids are so resilient!!