Well Kristoffer vomited twice this morning. The drug he got yesterday is really hard on his tummy. Thank goodness he only gets it once during the week. He actually only has to get it one more time during treatment. He doesn't act like he doesn't feel good though. He is still up playing games and acts like he feels fine. So hopefully this round of nausea is already starting to pass! The CAT scan Kristoffer got in Farmington last week shows no changes. Which is good news because that shows that nothing new is growing and the chemo is working. I did find out that Kristoffer will have to be re-immunized about 6 months after chemo because the chemo wipes out all of his immunizations. Bummer. We will face that when we get to that point.
Wednesday, July 15, 2009
Tuesday, July 14, 2009
Back to UNM
Well we came back to UNM yesterday for another week of chemo. Kristoffer cannot get the IV nutrition and chemo together so we have stopped the IV nutrition for now. He is eating a little better but not good enough. We are considering a gastric tube for the rest of chemo. It is a tube that goes directly into the stomach so we would do tube feedings at night and let him eat normal during the day. They also want Kristoffer to stay in the hospital for his whole treatment from now on. So we are going to bring our camper home this week. He had a hard time with the last treatment so they want to monitor him more closely. They did reduce his dose of chemo by 25%. So hopefully it won't suppress his immune system for as long. They actually didn't start his chemo yesterday so that does put us a day behind but we are hoping this week goes by fast!!
Fun in the Sun
Wednesday, July 8, 2009
A few days off
Kristoffer is finally home for a few days! The only tummy troubles he is having is a little nausea and vomiting every now and then. We are still giving him Zofran and it does help a little. So the doctors just want to make sure he is okay. I think we have been incredibly fortunate that he hasn't been nauseated up to this point but now his little body is just getting worn out. So we will be back at UNM for our appointment on Monday.
Tuesday, July 7, 2009
Going home!!
So here is the plan!! We are going to be going home on Wednesday! Today and Monday they have let Kristoffer come home for the day and then he has to come back at night for his IV nutrition. He is starting to eat much better but he still has episodes of nausea and some vomiting if we don't keep the Zofran in him. We will start doing the IV nutrition from home starting Wednesday night until Sunday night. We will be heading to UNM on Monday to start another week of chemo assuming his blood counts are high enough. The doctor also wants to do some tests to see why Kristoffer's belly is still having so much trouble. They are talking about reducing the dose of chemo by 25%. They do want to figure out his tummy troubles however before starting chemo. At least he will be able to be home for the rest of the week. Yeah!!! He is loving being home and so am I!
Sunday, July 5, 2009
Cousins
Saturday, July 4, 2009
The Healing Garden
Yesterday the nurse let Kristoffer go out to the healing garden to play with his brother and sisters. He had so much fun. We played baseball and ate lunch.
This is what Kristoffer's face looks like when you ask him to eat lunch. Needless to say he didn't eat.
He was feeling a lot better being outside and relaxing. I've missed this smile!
He missed his siblings. He lights up when they are around. We have been keeping them away so he would not get any germs.
Connor had fun playing in the little creek in the healing garden! He almost fell in a few times.
Such sweet boys!!
