We Caught a Break

Okay so Kristoffer's counts were too low to go to Albuquerque today!! I know this isn't really something to celebrate but it means the Albuquerque trip will wait until next week. Oddly his white blood cells went up and his red blood cells and platelets went down. So he had to get 1 unit of blood and 2 units of platelets but because he had white blood cells we get to come home. Yeah!! Kristoffer also got a special gift. A football player named Wes Byrd from Eastern New Mexico University came and donated blood for Kristoffer and brought Kristoffer a hat with his signature. Kristoffer was so excited. Thanks Wes!! Here are some pictures:




Connor got a new pair of sunglasses. My boys keep fighting over them because apparently these are spider-man glasses. But they do look cute on them.

Can We Catch A Break Please!!!

It has been a long weekend. We had to celebrate the 24th of July and try to balance having Kristoffer in the hospital. His counts have started to come up which is great. We were hoping to bring him home today but then his port stopped working. Which means we couldn't give his IV nutrition to him. So now if his counts are high enough in the morning we are heading to Albuquerque and he will have to have his port replaced and a feeding tube put in. What the HECK? And to top it all off Kristoffer started having nausea again this morning and threw up twice. Where did that come from??? He hasn't even had chemo for 9 days!!! And he didn't throw up once. Can we please catch a break before I lose my mind? Sorry I just needed to vent for a moment to try and keep my sanity!! I think if I spend one more night in the hospital I am going to have an anxiety attack!! I can't imagine how Kristoffer feels!

Kristoffer is doing good

Kristoffer is doing good. He is going to get more blood tomorrow and had more platelets today. His counts are low but his fever is gone. So he is doing much better than last time. He is loving his peanut butter crackers. He is supposed to have his feeding tube in on wednesday but it looks like it might have to wait a week until his counts are higher.

Back to the hospital

Well we are back in the hospital with a fever. He also needed blood and platelets. Thanks to all those that donated blood. Kristoffer did not have to wait for blood today. It is greatly appreciated. His white cell count is 100, which is better than 0. Hopefully we won't have to stay as long this time.

Boredom

We will be coming home tomorrow. Staying at UNM over the weekend is so boring. There are so many other things I would rather be doing! We cannot wait to be home. Kristoffer is done with chemo but we are getting his nutrition under control. No nausea or vomiting since Wednesday so he is doing good and ready to get home!!

A few updates

Connie brought the girls to UNM to see us today. It was a nice visit. Katelynn is a good entertainer for Kristoffer. She keeps him happy!! I haven't been blogging as good as I should so I will try to do better. So I put a few posts on here to update everyone.

The Plan for Now

So we have decided that the time has come to put a feeding tube in Kristoffer's stomach. It will go directly into his stomach so that we can give him more nutrients. He just will not eat anything good and can't make the cells he needs to fight off the chemo without better nutrition. The IV nutrition is only a short term solution! He can still eat normally during the day and we can run in nutrients during the night. We were hoping not to have to do this but his appetite is not coming back and he is becoming malnourished. We did have to deal with a not so friendly GI doctor. He only does surgery on Wednesdays. Well Kristoffer's white blood cells will be on their way to the toilet on Wednesday. I tried to tell him that but his comment to me was "well that is the day I have open so that is when I will do it." Who in their right mind would do a procedure on anyone with no white blood cells. So I complained to the oncologist who agreed and we changed the date to the 29th when hopefully his white blood cells will be on their way back up! Some doctors just chap me. I feel like such a complainer, but they can be so unreasonable and careless.