I know this is a bit premature but I cannot wait for Christmas this year. I was still a little out of it last year for Christmas. I think my nerves were still shot. Jonathon thinks I finally got back to my old self about 4 months ago. That poor man deserves a gold star!! That is a long time to put up with a wife that feels like she is losing it. So anyways I put Christmas music on my blog so that I can enjoy it while I am on the computer. I love Christmas! I hope you enjoy the music too!
Sunday, November 14, 2010
Thursday, November 11, 2010
Bye bye port!!!
The results are in and there is no evidence of cancer!! Kristoffer's labs look good and his port is history. He was pretty mad at us for having to go through his 6th surgery in his short life but we know he will be really happy to have the port out. We will schedule a CT scan and labs for February. Then the Doctor thought we could go to every 6 months for his check-ups. Wow! What would that be like? Only having to go through all of this twice a year.
I should have posted a picture of the port a long time ago because most of you probably don't know what I am talking about. So I found this picture on the internet. The bottom part (the metal piece) is the actual port and it had a tube that connected to his vein. All of that was under Kristoffers skin. The funny looking thing on top is the huber needle that we would put into the port to get blood. 
So when we had to access Kristoffer's port we would numb the skin over the port, clean the site really good and stick the needle in the rubber part in the middle of the port. Then tape it down. We would draw all of his labs from it and give all of the chemo through it. They are really nice because then you don't have to get poked over and over again! But there is always a risk for infection so whenever there was a fever we had to give heavy antibiotics to prevent the port from becoming infected. So although I appreciated the good port that Kristoffer had, we will not miss it! Bye bye!
Monday, November 8, 2010
Here We Go Again
It is that time in our lives again. Another trip to UNM. Kristoffer will be having multiple tests run. Labs, x-rays, pre-op for surgery which will hopefully be Thursday if all goes well. I dread these tests and look forward to them at the same time. I know I'm weird. I dread them because they could possibly lead down a path I don't want to go down again. I look forward to them because I love to hear that he is healthy. Most of you will not understand what it feels like to hear the words, "your son has no evidence of cancer." It is music to my ears.
The surgery will be to remove the port that he has in his chest. A very minor procedure! We will post the results of all the tests when we have them.
Sunday, November 7, 2010
Not for the faint of heart
This is a funny story but if you don't like stories about body functions you should probably turn back now.
The following conversation took place between Jonathon and Connor. Connor was sitting on the toilet and:
Jonathon: "Do you need me to help you wipe?"
Connor: "I can wipe myself"
So Connor wipes and wipes and nothing is on the toilet paper. Then he looks at Jonathon and says, "I guess it was just white poop Dad"!!
This kid really is a funny little guy. Some of the things he says are soooo funny!!
Sunday, October 31, 2010
Happy Halloween!!!
Halloween was a lot of fun this year. Katelynn is "too mature" to dress up this year so she handed out candy while the other kids went to the "trunk or treat" at our church. They had fun and got a lot of candy!
Sunday, October 17, 2010
What we have been up to...
Connor:
Connor is loving being in kindergarten. He is a funny kid. This is his first year of soccer and he has done great. He has scored every game and he has a smile on his face the whole time. It is fun to watch. He is in the primary program today and this is his line: "pwophets testify of Jesus Chwist." That is exactly how he says it. I know we need to work on how to say our r's but it is just so cute.
Kristoffer:
Has been loving playing soccer. He is fun to watch most days. He still gets winded pretty easily. We are finally at our 1 year mark since he has been done with chemo. The year that would never end has now been over for a year. The time is flying by. Why couldn't it go by that fast when he was sick? We have scheduled the surgery to remove his port for November 11th. He just loves life. He is just happy to be here. He is in the primary program at our church today and he has to give a talk on the miracle in his life. I am gonna need a tissue!
Ashley:
Went salmon snagging with her Uncle Bob and Aunt Gaylee. She had a great time. You haven't gone fishing until you have fished with Uncle Bob. He is a great teacher. She caught 2 fish. She said it is a lot harder than it looks. This is what she caught:
Katelynn had an 80's dance at the church. She went with some friends and had a great time. I helped with the hair. We were listening to 80's music while she was getting ready. This was how our conversation went:
Me: "I don't think your hair is big enough!"
Katelynn: "I can't believe you guys looked like this!"
Me: "I love the 80's!"




