We are here at UNM for round 4 of Kristoffer's treatment. We were a little disappointed with UNM this time. They dropped the ball with several different things. First, they didn't tell us that Kristoffer's labs would take a whole day to process. So we couldn't even start his treatment until Tuesday. These are labs we could have had done in Farmington but nobody told us that. It wouldn't have mattered anyway because they didn't have a bed until Tuesday at 3p.m. So that turns a 5 day trip into a 7 day trip and these are more days away from our other kids. We were very frustrated with the nurse in charge. But on a better note, Kristoffer started the treatments last night and is doing wonderful. He has not had any nausea or vomiting and he is eating good. So hopefully he will get his next treatment today and then they will let us take him back to our fifth wheel and just come back in daily for his medications. He is having a lot of fun "camping." We brought his bike and all of his favorite things so he is loving it. Thanks to all who are taking care of our kids and helping with meals for our family. We appreciate you!!!
Braces off!
2 years ago
1 comments:
That does sound very frustrating. I am glad he seems to be tolerating this round well. Tarrens old superviser from big 5 has a little girl that had stage 4 cancer in her stomach on hrr adrenal gland. She is in remission and doing great. They live in abq. and he said he and his wife would love to talk with you. He said there is a lot they dont tell you about the treatment and you begin to lose trust in the doctors if you dont have the info. from someone who has been there and seen it first hand. Does that sound like something you would be interested in? He also said how great UNM hospital was and that he believes Kristoffer is in good hands.
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