Well we had labs drawn on Monday and Kristoffer's platelet counts are too low to have chemo this week. We are aiming for next Tuesday for chemo if his counts are high enough. This is the first time the platelets have struggled this hard to come back up. His body is getting tired. I am so glad this is his last round of chemo.
Well it was a long week in the hospital. We went in last Saturday and came home on Friday! He is supposed to get chemo again on Tuesday but I don't know if his counts will be high enough! We will find out on Monday. He just seems so weak! He doesn't really want to eat much. Thank goodness for the feeding tube. We really need to be done. On a lighter note, Jonathon was trying to help me out and gave Connor a desperately needed haircut. There were a few mishaps and Connor didn't help things when he got a hold of the clippers later and gave himself a trim. Needless to say he now has very short hair. He is so blonde, he almost looks bald. Now I have two bald boys. He was pretty proud of himself as you can see from this picture.
Well surprisingly we are back at the hospital with low counts again today. Kristoffer was running a fever so we brought him in for platelets, blood and antibiotics to prevent infection since he can't fight it off himself. I know we are almost done with his treatments but it sure didn't make it any easier to bring him in today. His counts keep coming up slower and slower which means he has to stay longer and longer!! It just stinks!! We miss our lives.
Kristoffer is doing really good with this round of chemo. No nausea or vomiting and only two days to go. The feeding tube looks really good and is no longer causing pain. Kristoffer also has a really big appetite which is rare. He is loving the pancakes and apple jacks. Of course the hard part comes when his immune system hits the floor and then he is just weak and won't eat. So we should be going home on Saturday as long as he doesn't have any nausea or vomiting. I am in countdown mode now. Each day I think to myself, that will be the last time you have to get that drug or do this test or whatever it is. After he recovers from this round of chemo he will get one more 2 day round which is a little easier on him. Once he recovers from that, HE IS DONE. I cannot believe this nightmare is almost over. I can't remember what a normal life feels like. I know I will probably always be holding my breath every time he gets a check-up which will be frequently at first and then every year after the first year.
Well Kristoffer is finally healing. Once we went home from the hospital, Kristoffer's pain in his stomach got a lot worse and he started draining a lot of fluid from around his feeding tube. So we took him to UNM to see the GI doctor that put the tube in. He told us that Kristoffer had developed an ulcer from the feeding tube. He was in a lot of pain. That was last week and this week he started running a fever again even though his counts are fine. So we took him to the ER again and they tested everything and decided he was fine so they sent us home. He ran the fever for one more day but seems fine now. His stomach hurt for about a week. It finally looks like it is starting to heal. He is supposed to start another week of chemo Tuesday depending on how his stomach is healing!! This will be his last 5 day round of chemo. Yeah!!!!!!!!!!!!!!!!!!!
