Getting caught up on my posts!

Well I have been a terrible blogger lately. This hospital stay is starting to wear on me and I just haven't wanted to blog much so I am trying to get caught up so scroll down for more new posts!

Kristoffer is STILL in the hospital. What a nightmare this feeding tube has been. It has hurt worse that the surgery to remove his kidney did. So we started with the infected port. Well all of the antibiotics caused a yeast infection around his feeding tube which is quite painful. He also got a nasty intestinal infection. Then in the middle of all that his immune system bottomed out from all of the chemo. I don't know how much more Kristoffer can take. We are still in the hospital and hoping that in the next few days his counts will be high enough to take him home.

Nurse "My Love"

I know I have mentioned nurse "my love" before. Well here is a picture of her:


She brightens Kristoffer's day!!


Kristoffer took this picture. Quite the little photographer!

My trip to Atlanta

I had so much fun on my trip to Atlanta. All of my dad's side of the family lives in Atlanta. I have not been there for 7 years. I am not going to stay away that long again. I missed everyone too much. Here are some pictures of my trip:


Jonathon's Aunt Melissia and her friend Jory live in Atlanta. So I got to visit with them for a while.


We had the best time swimming in my Aunt Teri's pool!


My sweet Granddad. He will be 90 in February.


The whole crew. They are too much fun!


My Granddad, me and my Dad!! I miss them!


My Granddad, me, my Stepmom Kathy and my Dad!

The 1st day of school!!!

So school FINALLY started!! My kids desperately needed to get on a regular schedule. They were so excited to start.

Update

Kristoffer is back at our local hospital now and is doing really well. He is tolerating his feedings through his feeding tube and his counts are good. They will probably start to drop around Tuesday. He did have to get blood on Thursday but Grandma was generous enough to give him hers. I am in Atlanta visiting my dad's side of the family. I am having a great time. I wish I could stay a little longer. We are having a big family dinner tonight. I need to try to come here more often. I really have missed them. It has been a nice break so hopefully now I will have renewed energy to last these last two rounds of chemo!!

Progress

So Kristoffer has had a rough week. I think we are finally making progress. His blood cultures are negative for bacteria which is great. He still has to get IV antibiotics for 8 more days. The chemo made him so sick this time. Lots of nausea and vomiting. They finally gave him a very strong dose of Zofran which seems to be working. Now the tube feeding will actually stay in his belly. We are hoping to transfer him back to our hospital so we can be closer to home! Is it terrible that I am still planning to go see family in Atlanta on Thursday? I already had my ticket and I did not think Kristoffer would still be in the hospital. I have great family helping with our kids and I really want to see my family. So that is the plan for now.

Really???

Today was better in some ways and worse in others. Kristoffer has not had any pain since yesterday. There is also less bacteria in his port which is good but now he is vomiting from the chemo. We solve one problem and then another one starts. Poor baby. He hardly complains at all. We will see what tomorrow brings!

Tough day

Today we found out that Kristoffer has a bacterial infection in his port. So now he has to be on IV antibiotics for ten days. Also his platelets dropped too low to get chemo. So we are pretty bummed. It just seems like its one thing after another. So we will just have to wait and see how he does tomorrow. Everything depends on his labs. We are hoping for the best. His feeding tube is not hurting as bad as yesterday. So that was one good thing.

The Feeding Tube

Well the feeding tube was placed today. I know in my head that he needs it but I felt like the worst mom putting him through another surgery. It was hurting pretty bad this morning but he is doing a little better now. Gotta love morphine. We are hoping to run the feeding in at night and let him eat normal during the day. We will wait to start chemo until tomorrow to give him a day to heal.

The Plan for the Week

Tomorrow we will head back to UNM. They are going to admit Kristoffer and see why his port isn't working. Then on Thursday morning he will get his feeding tube. Once his port is fixed they will start his two days of chemo. If his pain is fine after chemo then we will get to come home. So we will just have to wait and see how good he does after the port and feeding tube are in.

Happy Birthday Ashley & Connor

Connor and Ashley had to share a birthday party this year. With Kristoffer in and out of the hospital it is hard to find time to have parties.


Connor was so excited. I think he got everything he wanted. Spider-man toys, Thomas the train, cars, trucks, animals, etc.


Ashley felt a little slighted this year. She really wanted to have a big slumber party with some of her friends but we just didn't have the time this year. So maybe next year.


She did love all of her presents and is looking forward to shopping with her birthday money.